Websites mentioned in SUPERTWINS Magazine

Infertility

American Society for Reproductive Medicine - includes information on legal, ethical, and financial issues related to many infertility, as well as a list of patient fact sheets covering multiple births, specific procedures, and even adoption.

Atlanta Reproductive Health Center - provides information in areas of women's health including: infertility, IVF, endometriosis, and other fertility issues.

Infertility Resources - extensive lists of website resources regarding IVF, ICSI, infertility clinics, donor egg and surrogacy services (e.g., surrogate mothers), tubal reversal doctors, vasectomy reversal doctors, natural infertility treatment, male infertility services, sperm banks, pharmacies, infertility books and videotapes, sperm testing, infertility support, and infertility drugs and medications.

MOST Recommendations on the Responsible Use of Fertility Treatments to Reduce the Number of High-Risk Multiple Birth Pregnancies (PDF) offers more information on fertility treatments and the conception of multiples.

Multiple Pregnancy and Birth: Considering Fertility Treatments (PDF) - an article from the American College of Obstetricians and Gynecologists (ACOG), March of Dimes, and the American Society for Reproductive Medicine on the risks associated with infertility treatments and multiple births.

RESOLVE - a national non-profit organization that assists people in resolving their infertility by providing information, support, and advocacy.

Society for Assisted Reproductive Technology - provides information on reproductive technologies such as in-vitro fertilization, frozen embryos, ovarian stimulation, and more.

US Center for Disease Control (CDC) Assisted Reproductive Technology (ART) page offers a yearly report on ART success rates and several special reports covering ART related topics such as the risk of multiple births when undergoing ART procedures.

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Pregnancy

ChildBirth.org - lists many pregnancy links of educational, informational, and personal nature.

EPregnancy - informing and educating women about their options in regard to fertility, pregnancy and birth, and to inform and enlighten all parents with young children.

KidsHealth Week-by-Week Pregnancy Calendar - is a detailed guide to all the changes taking place in your baby and in you! Each week of pregnancy includes a description of your baby's development, as well as an explanation of the changes taking place in your body. You'll also find important medical info that will help keep you and your baby healthy.

Perinatal.com - if you have had problems with this or past pregnancies, have patients with problem pregnancies, or simply have questions about pregnancy, then you have come to the right place.

Perinatal Hospice - As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices around the country are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.

A Mothers Heart: Peripartum Cardiomyopathy Support Network - offers support, news, research opportunities, and information about Peripartum Cardiomyopathy.

Pregnant With Cancer Network – a national non-profit organization for women diagnosed with cancer during pregnancy.

Sidelines - a network of support groups across the country for women with complicated pregnancies and their families.

Twin-To-Twin Transfusion Syndrome Foundation - "... solely dedicated to providing immediate and lifesaving educational, emotional and financial support to families, medical professionals, and other caregivers before, during, and after a diagnosis of twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, providing NICU, special needs and bereavement support, furthering medical research, and keeping families together the way twins are meant to be."

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Depression After Delivery - a national, nonprofit organization, which has provided support for women with antepartum and postpartum disorders (PPD) since 1985.

Depression During and After Pregnancy – information about depression during pregnancy and postpartum depression, from the National Women’s Health Information Center.

National Suicide Prevention Lifeline - this is funded by the U.S. government and the operators have numbers to local mental health providers within the U.S. The National Suicide Prevention Lifeline is a 24-hour, toll-free suicide prevention service available to anyone in suicidal crisis. If you need help, please dial 1-800-273-TALK (8255). You will be routed to the closest possible crisis center in your area. Your call is free and confidential. Para obtener asistencia en español durante las 24 horas, llame al 1-888-628-9454

Postpartum Dads – support for dads and families, providing firsthand information and guidance through the experience of PPD.

Postpartum Depression Support – information and peer support for women who are experiencing postpartum depression.

Postpartum Stress Center - serving the needs of pregnant women and their families who experience difficulties related to pregnancy, pregnancy loss and the postpartum period.

Postpartum Support International – information and support for postpartum depression.

The Postpartum Resource Center of New York - a comprehensive website for mothers suffering form prenatal or postpartum depression.

The Ruth Rhoden Craven Foundation Inc. for Postpartum Depression Awareness - A nonprofit organization located in Mt. Pleasant, SC, USA created in memory of Ruth Rhoden, a woman whose life ended due to her postpartum mood disorder.

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December 2006 PREEMIE Act - Find out more information about this important piece of legislation designed to increase awareness of the issues related to premature infants and provide research funding in an effort to reduce the number of preterm births in the US.

Kangaroo Care – a list of links to information about kangaroo care, including studies, stories, how-to’s, and the benefits of using kangaroo care.

Meriter - Meriter Hospital offers an excellent area on its website for parents of premature infants.

NICU Glossary of Terms - PreemieCare's wonderful resource for parents of preemies trying to learn all the medical terms and acronyms associated with the NICU.

PreemieCare – MOST’s sister site: The mission of PreemieCare is to educate, support and offer additional resources for families of babies born preterm. Issues include RSV awareness and prevention, breastfeeding preemies, parenting in the NICU, early intervention and much more. Be sure to check PreemieCare's listing of State and National support groups for parents of preemies, Preemie Resources, Preemie Stories, and Preemie Photo Gallery.

Preemies Today - is the only preemie parent support group in Northern Virginia, Maryland, and Washington DC.  It is our mission to reach out and provide support to families of infants born prematurely beginning at birth and throughout childhood, and   membership is FREE.  Member benefits include parent support, online support, family gatherings, educational seminars, monthly newsletter, and sharing of ideas and experiences.  Contact Preemies Today or subscribe online.

Premature Infants: A Later Look - is a follow up research project looking at the developmental progress of preemies as the age.

Respiratory Syncitial Virus (RSV) - What parents of preemies need to now about this virus.

The Ottawa Coalition for the Prevention of Low Birth Weight - promotes healthy births by increasing awareness of the impact of low birth weight on babies, their families and communities, the factors that contribute to low birth weight and the steps that can be taken to reduce its incidence.

What to Look for in a Neonatal Intensive Care Unit – a web page from Children’s Hospital of Iowa on how to assess an NICU to be sure your high-risk baby(s) will receive the highest care.

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About.com's Toddler Parenting Tips - Tips on caring for you toddler, such as when to switch to low fat milk, when to start potty training, and when to move to a toddler bed.

CarSeatData.org - This site is a great resource for information about infant and child car seats. The site provides buying guides, guidelines on car seat/vehicle compatibility, car seat FAQs, where to find a certified car seat inspector to assess a car seat's installation, and one of the most useful resources for parents of multiples a data sheet listing the measurements for dozens of the most common car seats on the market to help parents determine whether 3, 4, 5, or more seats will fit.

Consumer Protection Safety Commission Product Recall Alerts

DLTK’s Custom Chore Chart – offers customized chore charts that allow parents to create and print theme charts to help children track their chore progress.

InfantReflux.org - is the first all-inclusive infant acid reflux site on the Internet!  A one-stop shop for infant reflux.

Long Island Infant Development Program - provides developmental milestones start from birth through age 5 years.

Toilet Training Made Semi-Easy – Potty training tips and ideas.

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American Society for Reproductive Medicine - A guide for telling children about conception following the use of reproductive technology.

Multiples in School - Pat Preedy, Ph.D.'s article on multiples in school from the Multiples Births: Prenatal Education website.

Twins and Multiples - Educating Twins, Triplets and More - This site provides information and downloadable resources for parents of multiple-birth children and those who work with them: teachers, school administrators or educational support staff.

Twins/Multiples in School - A three part series on school placement for twins, triplets, and more, as well as a variety of other resources on school-age multiples.

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Australian Multiple Birth Association - a support group for Australian parents of twins and higher order multiples

Center for Study of Multiple Birth - this website's purpose is to stimulate and foster medical and social research in the area of multiple birth and to help parents with the special problems they and their offspring may encounter.

Monoamniotic.org - A site for families with monoamniotic multiples (multiples who shared a single amniotic sac). This site offers information, support and resources related to the challenges facing these rare multiple births.

Multiple Births Canada/Naissances Multiples Canada - a non-profit organization of parents of multiples across Canada.

The National Organization of Mothers of Twins Clubs, Inc. - a support group for parents of twins and higher order multiples.

The Triplet Connection - a network of caring and sharing for families of triplets, quads, quintuplets and sextuplets.

The Triplets Parents Organization in Denmark - a support group for parents of twins and higher order multiples in Denmark.

Twins and Supertwins in Japan (in Japanese)- lists resources for HOM's in Japan.

Twins Day Fesitivals - publishes a list of multiples celebrations around the world including events in the US, Canada, Mexico, Australia, France, Italy, Beijing, Poland, Sri Lanka, The Philippines, and Puerto Rico

Twins Services - Articles on Twin Care and Development This page has several interesting articles on the care of twins.

Twins World - website created by Debbie and Lisa Ganz. Support for twins separated at birth, twinless twin events, twin weddings, twin baby showers, twin fundraisers and twins festivals. They also have a help line and information line for multiples, and continue to establish and develop programs furthering twin awareness and support.

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Looking for a Developmental Pediatrician one who specializes in some other area? Look in the General Medical section of this page for resources on locating a health care provider.

Aaron's Tracheostomy Page, is the internet's leading tracheostomy resource since 1996. The mission of Aaron's Page is to help assure the highest quality home care for children with tracheostomies, to provide needed tracheostomy information in order to ease some of the anxiety related to caring for a child with a trach. A well-informed family will usually experience less anxiety. And perhaps most important, to facilitate parent-to-parent networking and support. Information is necessary for parents of medically challenged children, however what often helps parents most is knowing that they are not alone.

American Academy of Pediatrics - website has a tool for building a Personal Care Notebook for individuals with disabilities containing links to downloads, fact sheets, and forms.

American Speech-language and Hearing Association - a professional, scientific, and credentialing association for audiologists, speech-language pathologists, and speech, language, and hearing scientists.

Autism Society of America – a network of parents, family members and professionals working together to bring about positive changes within the world of autism.

Autism and Vaccines from the CDC - The Centers for Disease Control offers FAQs and a variety of quality resources on the topic of vaccines and autism.

Beyond Play - products and toys for children with special needs

Born 2 Sign - Sign language for children

Children and Adults with AD/HD (ADHD) - non-profit organization serving individuals with AD/HD and their families.

Circle of Inclusion Web Site - offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age eight.

Early Intervention - from KidSource - article on early intervention

Exceptional Parent Magazine – providing information, support, ideas, encouragement & outreach for parents and families of children with disabilities, and the professionals who work with them.

Learning Disabilities Online - thousands of helpful articles on learning disabilities and ADHD, monthly columns by noted experts in the field, a free and confidential question and answer service, active bulletin boards, and a Yellow Pages referral directory of professionals, schools, and products.

Listen Up – website dedicated to providing information, answers, help, ideas, resources, and anything else related to hearing-impairment.

National Dissemination Center for Children with Disabilities - provides information per state on: disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA, the nation's special education law; No Child Left Behind, the nation's general education law; and research-based information on effective practices for children with disabilities. Also available in Spanish.

Parents’ Guide to Functional Assessment and Support (PDF) – report that explains the purposes and uses of a functional assessment

Positive Solutions of New York, LLC, an organization headed by one of MOST's Advisory Board members Jennifer Brout Ed.M., Psy.D., is dedicated to furthering research of Sensory Processing Disorders to better understand how sensory processing affects child development, learning and psychological functioning. In addition to sponsoring specific scientific research, Positive Solutions of New York facilitates events and creative projects for the purpose of raising awareness and resources.

Sevier County Board of Education - links to many articles regarding Accommodations, IEPs, and forms. Based in Tennessee, but much of the information can be applied nationally.

United Cerebral Palsy Organization - UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability.

Wrightslaw - accurate, up-to-date information about special education law and advocacy for children with disabilities. You will find articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.

LD Online - Learning disabilities and ADHD

KinderArt - Crafts for special needs children

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A Place to Remember - uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby

Alliance of Grandparents, Support in Tragedy (AGAST) - is an all volunteer organization dedicated to helping grandparents through the trauma, stress and grief after the loss of a grandchild

Baby Angel Pics - touches up parent photos of stillborn babies.  They do this for free to offer parents better pictures of their child.

Be Not Afraid - is a network of concerned parents, professionals, and laypersons who have experienced and/or worked closely with issues surrounding poor prenatal diagnoses. In presenting our stories and information relevant to various diagnoses, we intend to offer hope to parents who are asked to make life and death decisions for their children.

Center for the Loss in Multiple Births (CLIMB) - is a support group for parents of multiples who experience one or more losses.

Centering Corporation -offers general grief resources including a newsletter, FAQs, and more.

Compassionate Friends - is a non-profit, self-help support organization to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.

Dr. Beth Pector's website- (one of MOST's Professional Advisory Board members) provides articles on prematurity, loss, grief, and bereavement.

eLIMBO - is an online email support group for parents who experience a loss of one or more multiples.

Forever Our Angels - Hannah Stone writes a book to offer support to parents grieving an early loss, as someone who has been there. In her book, "Forever Our Angels" fathers and mothers share their hidden pain over this very real loss.

Guardian Angel Perinatal Support Group - offers bereavement support for parents whose babies have died during pregnancy or in infancy. 

Hygeia - is a global community and Internet portal providing programs to educate, counsel and support families who grieve the loss of a pregnancy or newborn child.  They advocate for the healthcare of women and children, worldwide, and promote humanism in the education of tomorrow's healthcare professionals.

Kota Press - provides grief support to bereaved parents and those who care for them after the death of a child.  Through this site, you can find journals, articles and can purchase unique publications relating to the loss of a baby.  

Le Leche League - provides this article on breastfeeding after the loss of a multiple.

March of Dimes - mission is to improve the health of babies.  Their site has many articles for bereaved parents, grandparents and family members.  They offer a free bereavement packet in English and Spanish.   

MEND - (Mommies Enduring Neonatal Death) is a Christian, non-profit organization that reaches out to families who have suffered the loss of a baby through miscarriage, stillbirth, or early infant death.

MISS Foundation - is a volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause.

Multiples Angel Network - shares stories and support for families experiencing loss during a multiple birth pregnancy or beyond

Multiple Births: Prenatal Education and Bereavement Support - offers bereavement information for parents and siblings.

My Forever Child - offers personalized memorial keepsakes, remembrance jewelry and sympathy gifts to comfort those touched by the loss of a Child, no matter what age.

National Council of Jewish Women/Perinatal Loss Support’s - Pregnancy Loss Support Program (PLSP) for Miscarriage, Stillbirth, and Newborn Death volunteers offer nationwide telephone counseling and New York metropolitan area support groups to those who have experienced miscarriage, stillbirth or newborn death as well as to those who are pregnant after a loss. PLSP is free of charge, open to the community, and non-sectarian.

Now I Lay Me Down to Sleep - is a non-profit organization that provides free sensitive photography services to parents of infants as early as 20 weeks gestation who are dying to capture those precious final days and moments that become cherished family heirlooms and reminders of lives loved. All services are free to families.

Perinatal Hospice - As prenatal testing becomes increasingly routine, more parents are learning devastating news before their babies are born. In too many places, the ability to diagnose has raced ahead of the ability to care for these families and their babies. But in a beautiful and practical response, some pioneering hospitals and hospices around the country are starting perinatal hospice or perinatal palliative care programs for families who wish to continue their pregnancies with babies who likely will die before or shortly after birth.

Pregnancy Loss Information - About.com - has articles and resources concerning pregnancy loss, both the physical and emotional sides, from miscarriage to ectopic pregnancy and more.

Selective Reduction Loss Support - is an online email group for parents who undergo a selective reduction.

Shrine of the Holy Innocents - is dedicated in memory of the children who were stillborn.  This site offers the opportunity for parents to name their baby and have the opportunity to have your baby's name inscribed in the "Book of Life”.

Silent Grief - support for all who have suffered miscarriage and later child loss.

Subsequent Pregnancy After a Loss (SPAL) - a warm and compassionate community of people who have experienced the loss of a child due to miscarriage, selective termination, stillbirth, neonatal death, sudden infant death, or accidental death.

Synspectrum - developed by a family practice physician and bereaved mother, this page lists organizations, print & website resources that are helpful for parents facing the challenges of raising multiples, working through loss of one or more multiples, or raising one or more premature or special needs child(ren).

Tear Soup/Perinatal Loss - provides bereavement resources, memorial products and links to help through your personal loss. It also serves as an excellent educational tool for all who travel down the road of grief.

Three Little Angels Foundation - offers unique tools to help parents suffering the heartbreak of infant death and empowers families to care for their child, make as many memories as possible and to plan a precious goodbye.

Twin Loss NZ - Bereavement support for families who experience the loss of one or more multiples (New Zealand).

Twin-to-Twin Transfusion Syndrome Foundation offers support to parents who lose a multiple due to TTTS.

Twinless Twin - support for multiples births who have lost a multiple birth sibling.

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PreemieCare: offers information regarding insurance

The Patient Access Network Foundation is a non-profit 501(c)(3) organization dedicated to supporting the needs of patients that cannot access the treatments they need due to out-of-pocket health care costs. Contact the Patient Access Network Foundation at PO Box 221858; Charlotte NC 28222-1858, call 1-866-316-PANF (7263) or email at contact@patientaccessnetwork.org

How to appeal a decision from your insurance company (PDF) - "Tips for Communicating with your Insurance Company" has information on taking charge of your health care needs, being familiar with your benefits, and communicating with your plan and employer to give you the best opportunity to obtain coverage of appropriate and necessary medical care.

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The  American Academy of Pediatrics website has a link on their home page under "Answers for Parent": Find a pediatrician or subspecialist to help parents locate health care providers in their area. Put in a location and subspecialty, if desired, and find pediatricians. Note: this list does not represent all specialist, only those who have chosen to be members of the particular specialty.)

The American Board of Pediatrics website has a link (on the top left) called "Is my pediatrician certified." Parents can use the pull down window for  "area of certificaton" and choose and specialty and state to get a list of board certified providers by state.  

ChildHealthGuide.com - CHG is the only online medical reference that uses video clips, photos, animation and guided Q & A to help parents better understand their child's health issues. Easy-to-use, it features more than 100 of the most common childhood maladies, helping to more accurately determine the best course of action for a sick or injured child.

HealthFinder - A U.S. Department of Health and Human Services website that provides reliable online health information to consumers. MOST is recognized as a trusted and recommended link for health information on multiple births by HealthFinder.

InfantReflux.org - is the first all-inclusive infant acid reflux site on the Internet!  A one-stop shop for infant reflux.

KidsHealth - Offers several first aid instruction sheets and emergency contact forms for all parents to use.

MedlinePlus provides links to directories to help you find health professionals, services and facilities. NLM (AND MOST) does not endorse or recommend the organizations that produce these directories or the individuals or organizations that are included in the directories.

National Women's Health Indicators Database - up-to-date women's health statistics and information.

National Institute of Mental Health

NOAH: New York Online Access to Health - an indexed compilation of website resources on a variety of health topics. NOAH seeks to provide high quality full-text health information for consumers that is accurate, timely, relevant and unbiased. NOAH currently supports English and Spanish.

MOST/PreemieCare Medical News page - View a list of recent outside research studies related to multiple births and premature infants on the

Virtual Children's Hospital - Topic Index – a good resource with information on common medical issues.

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Mead Johnson - Enfamil Formula - informative site on infant care and products, sponsored by Mead Johnson.

Medela Breast Pumps - as a leading manufacturer of professional-quality breastfeeding products, Medela is committed to making your breastfeeding experience as easy and as comfortable as possible.

Similac Welcome Addition Club - informative site on how to feed your baby, sponsored by Similac formula.

US Consumer Product Safety Commission - Check this site frequently for the latest product recalls and safety news.

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Read about multiple birth families affected by the 2005 hurricanes

Air America Public Voicemail 1-866-217-6255 Air America Radio's Public Voicemail is a way for disconnected people to communicate.

Easter Seals “DisasterResourceCenter” A regularly updated information page to help people with disabilities and their families stay informed about disability services following the aftermath a disaster (e.g., links to government resources and hotlines, information on disaster assistance for people with disabilities, information for health care professionals.)

Family Voices Coordinates efforts with the Family Recovery Project through SAMSHA to address children's mental health needs

Prescription Patient Assistant Programs Programs sponsored by pharmaceutical companies which offer free medications to those who qualify. These programs have been in existence for at least 8 years, and are a result of an agreement between pharmaceutical companies and Congress. These programs are for everyone whether they are elderly, disabled, un-employed, or under-paid.

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