97. How do we inform family/friends about a disability?
Informing
family and friends is a very personal decision. First, you must be comfortable
with the diagnosis. Once you have accepted and understand the challenges
a child is facing, then you are best prepared to share the diagnosis.
Since those close to you are the people who will be supporting you and
perhaps providing care for the child or his or her siblings, providing
them with accurate and clear information is critical. Providing informational
literature about the disability, such as an article, book, or pamphlet,
might be helpful. This approach explains the “facts” of the
situation using well-respected resources.
Resources |
The MOST Special Needs Forum is available for MOST members with special needs children.
MOST also posts additional links to outside resources for families with special needs chilren.
MOST also offers a collection of articles for families who have Multiples with Special Needs.
Please
Note:
MOST provides these FAQs for informational purposes and cautions visitors
not to use the content below to make treatment decisions without personally
consulting a qualified health care provider. Reuse of this content without
proper citation is a violation of copyright. To obtain permission to use
Supertwins 101 content contact
MOST.
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Copyright 2005 Updated 9/26/08