97. How do we inform family/friends about a disability?

Informing family and friends is a very personal decision. First, you must be comfortable with the diagnosis. Once you have accepted and understand the challenges a child is facing, then you are best prepared to share the diagnosis. Since those close to you are the people who will be supporting you and perhaps providing care for the child or his or her siblings, providing them with accurate and clear information is critical. Providing informational literature about the disability, such as an article, book, or pamphlet, might be helpful. This approach explains the “facts” of the situation using well-respected resources.

 

Resources

 

The MOST Special Needs Forum is available for MOST members with special needs children.

MOST also posts additional links to outside resources for families with special needs chilren.

MOST also offers a collection of articles for families who have Multiples with Special Needs.

 

 

Please Note:
MOST provides these FAQs for informational purposes and cautions visitors not to use the content below to make treatment decisions without personally consulting a qualified health care provider. Reuse of this content without proper citation is a violation of copyright. To obtain permission to use Supertwins 101 content contact MOST.

 

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Copyright 2005    Updated 7/26/10