Triplets, Quadruplets, Quintuplets, Sextuplets, Multiples - MOST Mothers of Supertwins

Advocacy Policies & Projects

Each year MOST works on a number of projects designed to advocate on behalf of multiple birth families and families of infants born preterm. These efforts are critical to the MOST and PreemieCare missions in helping all families of multiples and preemies live better lives. MOST Advocacy Projects Include: Serving as speakers/presenters at conferences, research summits and professional meetings to represent the interests of multiples and preemies. Touring and surveying hospitals. Writing policy statements (linked on this page) on issues of concern to families of multiples and preemies. Conducting research and polls and sharing statistical findings with professionals Providing professional resources and update-to-date information on current medical studies to those who work with multiple birth and preemie families. Conducting interviews with a variety of media outlets (Hear audio interviews with MOST's Executive Director: Maureen Boyle) Participating in medical and parenting-related focus groups	MOST Policy Statements


Highlights from 20+ Years of Advocacy Projects
(2009) Wrote letters in opposition to addition of Prior Authorization requirements for Synagis coverage through New York State Medicaid, in order to maintain access to this preventive measure for New York's most vulnerable babies. (2009) Represented multiple birth families and families of preemies at AAP's Bright Futures meeting in Washington DC (2009) Served as the keynote speaker at the New York State Preemie Health Summit on The Impact of a Preterm Birth on a Family (2009) Represented multiple birth families and families of preemies at AAP's Bright Futures meeting in Washington DC (2009) Presented at the National Perinatal Social Workers conference with a presentation titled "Multiple Birth Families: NICU and Beyond" (2008) Toured and surveyed NICUs in Illinois, South Carolina, and New York (2007) Created and aired the MOST Public Service Announcement (2007) Endorsed the COMBO Declaration of Rights for Multiple Birth Families (PDF). (2006) Sent letter of concerns to an FDA Advisory Panel regarding the use of 17 hydroxyprogesterone (17P) for treatment of preterm labor (2005 - present) Represented families of multiples and preemies with national medical leaders through the National Preemie Health Coalition (2005) Presented data from the MOST Post-Partum Depression survey at the International Society for Twin Studies (ISTS) conference in Los Angeles, California (2001) Contributed to a 3-page PEOPLE Magazine feature story (2001) Shared research results from the MOST Medical Birth survey at the International Society for Twin Studies international conference in England (1998 - 2005) Conducted national RSV Awareness Campaigns and Tours (1996) Contributed to a Smithsonian Magazine feature story on multiple births (1995 - 1997) Appeared on a series of shows with NBC’s Today Show (1994) Contributed to the introduction of the National Safe Motherhood Act (1993) Consulted on the first national news program focused on higher-order multiple pregnancies (1992) Represented multiple birth parents at FDA hearings (1990) Represented multiple birth parents at national conferences

Updated 2/16/10

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